Volunteer with us
The DYNC1H1 Association is run by a small group of determined, busy moms volunteering their time. We need your help to do what’s best for our community.
Can you find a few minutes to help? We’re looking for help with fundraising, translation, community outreach, and sharing your story. Together we can make DYNC1H1-Related Disorders a treatable condition, but not without your help.
Fundraise
Host a dinner with friends, organize a hat day at your child’s school, make a custom designed T-Shirt that represents your loved one. There are many low-effort options, and every bit helps. Click below for our fundraising manual with ideas and guidance for how to raise money for this worthy cause.
Speak out
Write about your experiences for the blog, send us pictures, translate graphics into other languages, attend events, join a community chat, and participate in research.
We need your help to keep our content fresh and accessible to all audiences.
Donate
Become a monthly sustainer to ensure we can continue our programming for families and researchers alike. Donate to help enhance our drug repurposing projects or to create a new model to ensure every DAND patient is represented. Science requires funding, and for that, we need your help.
Help us share more beautiful DAND faces with just a few taps!
If you are open to the DYNC1H1 Association sharing photos of you or your child on social media, the website, and other materials, please submit some images below.
We’re also looking for families interesting in sharing their stories. We would love to include you or your child in our weekly patient highlight social media series, in a longer versions of patients’ stories as blog posts, or simply as standalone photos for the website and media. See past examples and follow us on Instagram and Facebook!
Now share those DAND-orable faces with us!
Our families need you.
Without your generous help, we cannot make this world an easier place for those with DYNC1H1 Associated Neurological Disorders. This is an urgent plea from a community living with a debilitating and degenerative disease. Help us. Donate Today.