Alec shared how growing up with his younger brother, Conor, has shaped his perspective on life and also his career aspirations.

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Jannine Scott shared about her own experience with DYNC1H1 and how it has affected her two daughters with inherited DYNC1H1.

I shared the post below on my LinkedIn after making the decision to step away from my career. Having a child diagnosed with DYNC1H1 and other related comorbidities has been difficult, and this decision was not made lightly. I hope that by sharing my story, I can help other families feel less alone.

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