Interested in DYNC1H1 & Dynein Science?
Want to participate in our research efforts?
Join our research network!
The DYNC1H1 Association is cultivating relationships with a scientists, medical professionals, and pharmaceutical developers in the hopes of accelerating research towards meaningful treatments for those affected by DYNC1H1-Associated Neurological Disorders.
These disorders are heterogeneous, degenerative, and disabling. At this point, patients often visit doctors who are often unable to provide any meaningful guidance. The process of diagnosis can also be long and difficult, requiring parents or individuals to advocate their way through a system that struggles with diagnosing these ultra-rare diseases.
As a part of our research network, you will receive invitations to our monthly Scientific Roundtables, as well as meaningful updates about other organizational events and opportunities for engagement, and we will promote any research opportunities to our patient community. Our community is highly motivated to participate in research, with many families willing to travel if needed.
We welcome all researchers, new and experienced, who want to contribute to this extraordinarily important work.
Interesting in joining our network?
Apply by completing the form below!
