We envision a world where anyone with a DYNC1H1 Variant has a safe & effective treatment.
Our Mission:
Create opportunities for research on DYNC1H1 with a constant drive towards low-risk, high reward treatments.
Our Commitment:
Forge networks of support within the diagnosed persons, provider, and outside community to make the wait easier.
We need your help to follow our path to a cure.
If you or your child have DYNC1H1 Variants, join our Patient Registry so that we can stay in contact and ensure we are addressing the needs of all individuals with DYNC1H1 Variants
Donate or create a fundraising team to support our research efforts.
