Brettne Frewin, vice-president and cofounder, walks you through the registration process on Simon’s Searchlight while doing so for her own daughter Piper. Make sure to have a digital copy of the genetic report with a DYNC1H1 variant diagnosis available for this event. A representative from Simon’s Searchlight will also be available to answer questions and help troubleshoot any challenges!

Register by filling out the form below! Can’t make it? Check out the tutorial videos under the form!

Can’t make the event? Follow the How To Video here!

What is Simon’s Searchlight and why is it important? Watch to find out.