Upcoming events.
IEP Crash Course
The IEP process can be overwhelming and intimidating. In this session, Erin Prosser, Rare Disease Mom and Certified Master IEP Coach, provides a Crash Course on how to prepare, what to consider, and what to expect in the IEP process.
Scientific Roundtable w. Dr. Peter Baas
Join us for a discussion on the role of microtubule dysfunction on causing and the potential for treating motor protein diseases.
Register here: https://zoom.us/meeting/register/tJckd-CqrT4tEtFUOCrAhRW4RSJ4LiQPrJvq
Community Chat
Join us for a informal Zoom meeting where we can connect with one another. It will be an hour to meet each other, share and relate about our struggles, successes, and check-in on how we're feeling about upcoming holidays.
Register to receive a Zoom link: https://docs.google.com/forms/d/e/1FAIpQLSf-h5j_AIKTPINhcBoj18U-FfVzHY18AqBXLiMkNwIEhkq1jg/viewform?usp=sf_link
Chat with a Genetic Counselor
Join us for a presentation by a neurology genetic counselor and a Q&A session to follow.
Join Simon's Searchlight with Brettne!
Find out why and how to support our community by registering and completing a profile on Simon’s Searchlight!
Kickoff Meeting
Let’s get it started! We have a plan, we have a team, and now we need YOU! Join us to find out how you can help us get treatments that are effective for the DYNC1H1 community!